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Resources
North Denver FASD Parent Support Group Colorado Springs FASD Parent Support Group
North Denver FASD Support Group Please contact Eileen Bisgard at 303-654-3246, eileen.bisgard@judicial.state.co.us. For information on the next meeting click here or check the calendar.
Colorado Springs FASD Support Group Please contact Eileen Bisgard at 303-654-3246, eileen.bisgard@judicial.state.co.us. For information on the next meeting click here or check the calendar. http://www.facebook.com/group.php?gid=119059598139462 A Facebook group for parents, professionals and anyone interested in FASD to ask questions and offer support.
For parents only to exchange information and support
A Directory of Resources for Families and Human Services Workers Concerned with Maternal Substance Abuse and Children with Fetal Alcohol Spectrum Disorders http://www.cdphe.state.co.us/dc/crcsn/fetalalcoholresources.html#source
Sewall Child Development Center Fetal Alcohol Syndrome Diagnostic Clinic
1360 Vine Street Denver, CO 80206 Tel: (303) 399-1800 Fax: (303 399-1419 Website: www.sewall.org Sewall Child Development Center has a multi-disciplinary Diagnostic and Evaluation Clinic that includes a developmental pediatrician trained in making a diagnosis of Fetal Alcohol Syndrome. Sewall has focused on providing educational and therapeutic services to young children and their families since 1980. Sewall's early intervention services include special education, speech/language, and motor therapies; developmental preschool, childcare, individual and family therapy, and family support. The Fetal Alcohol/Alcohol Tobacco and Other Drugs Prevention Outreach Project (FASPOP) Colorado Area Health Education Center (AHEC) University of Colorado Health Sciences Center UCHSC at Fitzsimons Fax: 303-724-0892 E-mail: Pamela.Gillen@UCHSC.edu Web site: http://www.uchsc.edu/ahec/fas/about.htm The Fetal Alcohol/Alcohol Tobacco and Other Drugs (FAS/ATOD) Prevention Outreach Project (POP) is a collaborative effort involving numerous community sectors and health, education, social service, law enforcement and community groups. The program has a statewide focus utilizing the Colorado AHEC system to provide program services to all regions of the state. The key strategies and goals for POP include: 1) information - to increase overall awareness of the nature and scope of the FAS/ATOD problem and effective strategies to prevent the problem; 2) education - to increase the knowledge and skills of individuals who work with high risk populations in the area of effective FAS/ATOD prevention; 3) problem identification and referral - to increase FAS/ATOD knowledge and problem identification and referral skills of health and human service providers who work with high risk individuals; 4) community based- to develop the capacity of local community groups to address FAS/ATOD issues in their area; 5) environmental - to increase overall knowledge of effective FAS/ATOD policies and help change current attitudes in the communities.
Health Care Program for Children with Special Needs (HCP)
Contact your local public health department or county nursing service or call Children and Youth with Special Health Care Needs 4300
Cherry Creek Drive South Website: www.hcpolorado.org Do you have concerns about your child's health or development? Do you suspect or have you been told that your child, or a child you know, has a chronic health related condition including fetal alcohol spectrum disorders? The Children and Youth with Special Health Care Needs program works to support children with special health care needs and their families. They can help you find services and resources such as diagnostic clinics, therapists, and community resources. These services are free and available to all families with children in your community.
1580 Logan Street, Suite 730 Denver, CO 80203 Email: mrymer@thearcofco.org The ARC has made individuals with fetal alcohol spectrum disorders and their families a population of special interest. The Arc of Colorado advocates with others to create the conditions under which all people with developmental disabilities experience opportunities to develop competency and to make choices, to have good relationships with family members and friends, to have respect and dignity, and to be full participants in all community living. Their goal is to help people with disabilities and their families become knowledgeable about disabilities and the services and supports that are available. A variety of other services may be provided by individual chapters.
Family Voices of Colorado 450 Lincoln, Suite 100 303-733-7000 Website: www.familyvoicesco.org Family Voices Colorado is a chapter of the national, grassroots organization composed of families and friends who care for and about our children with special health care needs. The primary goal of the organization is to ensure that our children's health is addressed amidst change in public and private health care systems. Family Voices Colorado also provides: Information and referral Advocacy Support Information Private Health Insurance Advocacy Training Systems Change/Policy Work
Local Public School Districts Call your local school district office or the Colorado Department of Education at 303-866-6943 to receive the name of the contact for your area Child Find is one of the primary public providers for developmental screening, assessment, and referral for children who have or are suspected of having developmental delays. Child Find is responsible for assessment and establishing eligibility for individuals from birth to 21 years of age. The school system provides services beginning at age 3. (They can tell you which program in your area serves children birth through 3 years of age.) The exact services provided are dependent upon the individual child’s needs, which may include but not be limited to speech/language therapy and occupational therapy. The primary role of the Child Find Team(s) is to locate, evaluate, and identify children with special needs. Each school district decides how to handle this and it may look different district-to-district.
Hotline: 1-800-284-0251
Colorado Springs Office
Hotline: 1-800-284-0251 Parent Advisors: 1-800-284-0251 or parentadvisor@peakparent.org
PEAK Parent Center is Colorado's Parent Training and Information Center. It is a statewide organization of parents of children with disabilities reaching out to assist other parents and professionals. PEAK Parent Center's commitment is that children, youth, and adults with disabilities lead rich, active lives and participate as full members of their schools and communities. They also offer a very detailed calendar on the Peak Parent Website at http://www.peakparent.org/calendar.asp. The calendar can be searched by dates, disability category or month.
Colorado Person-Centered Planning InitiativePEAK Parent Center, the Colorado Department of Education, and the Colorado Developmental Disabilities Council provide person-centered planning opportunities to people with disabilities between the ages 3-30 years old. This process supports the development of personal support circles to assist you in planning for the future. An assigned facilitator and a recorder guide you, your family, and other invited participants of your choice through a creative planning process of identifying dreams, setting goals and planning the steps needed to achieve those goals. After the session, you will have a concrete action plan for working together with your personal circle to reach your desired future.
The Legal Center for People with Disabilities and Older People 455 Sherman, Suite 130 Denver, CO 80203 303-722-0300 The Legal Center is an independent public interest non-profit specializing in civil rights and discrimination issues. They protect the human, civil and legal rights of people with mental and physical disabilities, people with HIV, and older people throughout Colorado. The Legal Center's primary goal is to open up the legal system to those who would otherwise be unable to voice their needs. The Everyday Guide to Special Education Law, by Randy Chapman, is an essential tool for parents to help them get the best education possible for their child with disabilities. This book is also a great resource for teachers and school administrators.
17th Judicial District FASD Initiative 1100 Judicial Center Drive Brighton, CO 80601 www.nofascolorado.org/projects.htm 303-654-3246 eileen.bisgard@judicial.state.co.us
The Seventeenth Judicial District FASD Initiative is a multi-disciplinary, inter-agency project formed to study and develop better practices in the prevention, assessment, diagnosis and treatment of Fetal Alcohol Spectrum Disorders (FASD) in children and adolescents. They will be screening and diagnosing children and youth entering the juvenile justice system in Adams County. Their web site links to other useful web sites.
Colorado Coalition of Adoptive Families P.O. Box 270398 Louisville, CO 80027-0398 303-620-5150
There has been an explosion of internet resources and materials relating to fetal alcohol spectrum disorders over the last few years. A few of the resources we have found to be most valuable for families are mentioned below. Each of them leads to more resources if you are interested in learning more.
The Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence http://www.fascenter.samhsa.gov/ The Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence is a project of the Substance Abuse and Mental Health Services Administration (SAMHSA). The FASD Center is a Federal initiative devoted to preventing and treating FASD. The mission of the FASD Center for Excellence is to facilitate the development and improvement of prevention, treatment, and care systems in the United States by providing national leadership and facilitating collaboration in the field. The Web site provides information and resources about FASD. For more help, you can request training and technical assistance. It also provides materials you can use to raise awareness about FASD.
National Organization on Fetal Alcohol Syndrome 900 17th Street, Northwest, Suite 910 Washington, D.C. 20006 Tel: (202) 785-4585 and 1-800-66-NOFAS toll-free) Fax: (202) 466-6456 E-mail: information@nofas.org Web Site: http:\\www.nofas.org
NOFAS is committed to raising public awareness about Fetal Alcohol Syndrome, the leading cause of mental retardation, and seeks to implement innovative ideas in prevention, education, intervention and advocacy. NOFAS takes a multicultural approach to prevention and healing among individuals, families and communities. NOFAS publishes brochures and a quarterly newsletter, “Notes on NOFAS”, which is free. They also have a state-by-state resource directory developed in conjunction with the Centers of Disease Control and Prevention that can be purchased or can be requested from their own state. This comprehensive listing of services contains valuable information for physicians, health care workers, FAS program counselors, teachers, parents and others seeking quick and accurate information NOFAS sponsors community seminars, and a national conference; call for further details.
Family Empowerment Network (FEN) UW Dept. of Family Medicine 777 South Mills Street Madison, WI. 53715 Contact Person: Patricia Cameron Tel: (1- 800) 462-5254, 608 262-6590 Fax: 608 265-2329 Email: fen@fammed.wisc.edu Website: www.fammed.wics.edu
A national organization serving families affected by Fetal Alcohol Syndrome and Fetal Alcohol Effects and the professionals who work with them. FEN does research and provides resource materials, technical assistance, an 1-800 advocate phone line, educational opportunities, an annual conference, and a teleconference series. Their mission is to empower families through education. Their web site is comprehensive and links to many other relevant web sites. It is a good place to start.
Centers for Disease Control and Prevention (CDC) http://www.cdc.gov/ncbddd/fas/default.htm
This federal agency monitors Health, detects and investigates health problems, conducts research to enhance prevention, and develops public policy to promote healthy behaviors nationally and worldwide. CDC funds programs focusing on the prevention and surveillance of FAS and on prevention of secondary disability in children with prenatal fetal alcohol effects.
Bill Dobovsky Memorial FASD Lending Library Information for both professionals and parents, including articles on FASD behavioral issues and FASD success stories. It is run by a parent of an adult with FASD. Check out the online library with books and materials on FASD available to parents free of charge. http://come-over.to//FAS/booklend.htm
Fetal Alcohol Syndrome Consultation, Education and Training Services, Inc. (FASCETS) FASCETS is a non-profit organization whose objective in part is to support improved outcomes for those with FAS/ARND. Diane Malbin is a nationally known trainer and educator on techniques that work for individuals with FAS/FASD. She provides current information and resources for supporting children, adolescents and adults with FAS/ARND, and for professionals and agencies working with them.
Fetal Alcohol Syndrome Handbook The University of South Dakota Center for Disabilities
A well written handbook that provides an overview of Fetal Alcohol Syndrome and Fetal Alcohol Spectrum Disorders with reference to other resources. It provides a readable starting place for those just learning about FAS. The entire handbook can be downloaded and printed.
University of Washington Fetal Alcohol Diagnostic Unit http://depts.washington.edu/fadu/
Access to the Iceberg newsletter
4 Paws 4 Paws is a contact for FASD Service dogs http://www.4pawsforability.org/FASDdogs.html
Suggested reading: Trying Differently Rather than Harder. Diane Malbin, M.S.W. Contact FASCETS, Inc. at 503-621-1271 or www.FASCETS.org. Fantastic Antone Succeeds edited by Judith Kleinfeld and Siobhan Westcott, University of Alaska Press FAS :Parent and Child by Barbara A. Morris and Lyn Weiner Fetal Alcohol Syndrome: A Guide for Families and Communities by Ann Streissguth
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