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Resources

 

Parent Support Groups:

    North Denver FASD Parent Support Group

    Colorado Springs FASD Parent Support Group

 
Colorado Resources
    NOFAS Colorado Facebook Page
    On-Line List Serve
    Sewall Child Development Center
    The Fetal Alcohol/Alcohol Tobacco and Other Drugs Prevention Outreach Project (FASPOP)
    Health Care Program for Children with Special Needs (HCP)
    Child Find
    PEAK Parent Center
    Colorado Coalition of Adoptive Families
 
    The Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence
    National Organization on Fetal Alcohol Syndrome
    Family Empowerment Network (FEN)
    Centers for Disease Control and Prevention  (CDC)
    Bill Dobovsky Memorial FASD Lending Library
    Fetal Alcohol Syndrome Consultation, Education and Training Services, Inc.  (FASCETS)
    Fetal Alcohol Syndrome Handbook
    University of Washington Fetal Alcohol Diagnostic Unit
    Access to the Iceberg newsletter
    FAS Bookshelf Inc
 
Books - Suggested Reading

Parent Support Groups:

 

North Denver FASD Support Group

Please contact Eileen Bisgard at 303-446-2442, execdir@nofascolorado.org.  For information on the next meeting click here or check the calendar.

 

Colorado Springs FASD Support Group

Please contact Julene Zizza at 520-234-7987, execdir@nofascolorado.org.  For information on the next meeting click here or check the calendar.

 

 

 Colorado Resources

NOFAS Colorado Facebook page

http://www.facebook.com/group.php?gid=119059598139462

A Facebook group for parents, professionals and anyone interested in FASD to ask questions and offer support. 

 

On-Line List Serve

ColoadoFAS@yahoo.groups.com

For parents only to exchange information and support

 

 

Sewall Child Development Center

Fetal Alcohol Syndrome Diagnostic Clinic

 

1360 Vine Street

Denver, CO  80206

Tel: (303) 399-1800

Fax: (303 399-1419

Website: www.sewall.org

 Sewall Child Development Center has a multi-disciplinary Diagnostic and Evaluation Clinic that includes a developmental pediatrician trained in making a diagnosis of Fetal Alcohol Syndrome. Sewall has focused on providing educational and therapeutic services to young children and their families since 1980.   Sewall's early intervention services include special education, speech/language, and motor therapies; developmental preschool, childcare, individual and family therapy, and family support.  

 

The Fetal Alcohol/Alcohol Tobacco and Other Drugs Prevention Outreach Project (FASPOP)

Colorado Area Health Education Center (AHEC)

University of Colorado Health Sciences Center

UCHSC at Fitzsimons
Colorado AHEC Program
P.O. Box 6508, Mail Stop F433
Aurora, CO 80045-0508Phone: 303-724-0327 or 1-866-474-1022 (Toll-free)

Fax: 303-724-0892

E-mail: Pamela.Gillen@UCHSC.edu

Web site: http://www.uchsc.edu/ahec/fas/about.htm

 The Fetal Alcohol/Alcohol Tobacco and Other Drugs (FAS/ATOD) Prevention Outreach Project (POP) is a collaborative effort involving numerous community sectors and health, education, social service, law enforcement and community groups.  The program has a statewide focus utilizing the Colorado AHEC system to provide program services to all regions of the state.

The key strategies and goals for POP include: 1) information - to increase overall awareness of the nature and scope of the FAS/ATOD problem and effective strategies to prevent the problem; 2) education - to increase the knowledge and skills of individuals who work with high risk populations in the area of effective FAS/ATOD prevention; 3) problem identification and referral - to increase FAS/ATOD knowledge and problem identification and referral skills of health and human service providers who work with high risk individuals; 4) community based- to develop the capacity of local community groups to address FAS/ATOD issues in their area; 5) environmental - to increase overall knowledge of effective FAS/ATOD policies and help change current attitudes in the communities.

 

Health Care Program for Children with Special Needs (HCP)

 

Contact your local public health department or county nursing service

or call

Children and Youth with Special Health Care Needs

4300 Cherry Creek Drive South
Denver, CO  80246

(303) 692-2370
E-mail: 
cdphe.psdrequests@state.co.us

       Website:  www.hcpolorado.org

Do you have concerns about your child's health or development?   

Do you suspect or have you been told that your child, or a child you know, has a chronic health related condition including fetal alcohol spectrum disorders? 

The Children and Youth with Special Health Care Needs program works to support  children with special health care needs and their families. 

They can help you find services and resources such as diagnostic clinics, therapists, and community resources.

These services are free and available to all families with children in your community.

 

ARC of Colorado

1580 Logan Street, Suite 730

Denver, CO 80203
Tel: 303.864.9334
Toll Free: 800.333.7690
Fax: 303.864.9330

Email: mrymer@thearcofco.org

www.thearcofco.org

The ARC has made individuals with fetal alcohol spectrum disorders and their families a population of special interest. The Arc of Colorado advocates with others to create the conditions under which all people with developmental disabilities experience opportunities to develop competency and to make choices, to have good relationships with family members and friends, to have respect and dignity, and to be full participants in all community living. Their goal is to help people with disabilities and their families become knowledgeable about disabilities and the services and supports that are available. A variety of other services may be provided by individual chapters.

 

Family Voices of Colorado

450 Lincoln, Suite 100

303-733-7000

Website:  www.familyvoicesco.org

Family Voices Colorado is a chapter of the national, grassroots organization composed of families and friends who care for and about our children with special health care needs.  The primary goal of the organization is to ensure that our children's health is addressed amidst change in public and private health care systems.  Family Voices Colorado also provides:

Information and referral

Advocacy Support Information

Private Health Insurance Advocacy

Training

Systems Change/Policy Work

 

Child Find

Local Public School Districts

Call your local school district office or

the Colorado Department of Education at 303-866-6943

to receive the name of the contact for your area 

Child Find is one of the primary public providers for developmental screening, assessment, and referral for children who have or are suspected of having developmental delays. Child Find is responsible for assessment and establishing eligibility for individuals from birth to 21 years of age. The school system provides services beginning at age 3. (They can tell you which program in your area serves children birth through 3 years of age.)  The exact services provided are dependent upon the individual child’s needs, which may include but not be limited to speech/language therapy and occupational therapy.

The primary role of the Child Find Team(s) is to locate, evaluate, and identify children with special needs. Each school district decides how to handle this and it may look different district-to-district.

 

PEAK Parent Center

Hotline:  1-800-284-0251


Denver Office
1177 Grant Ave, Suite 104
Denver, CO 80203
phone:1-303-864-1900
Fax 1-303-864-0035
email: outreach@peakparent.org
Parent Advisors: 1-800-284-0251 or parentadvisor@peakparent.org 

 

Colorado Springs Office
611 North Weber, Suite 200
Colorado Springs, CO 80903
Phone: 719-531-9400
Fax 719-531-9452

Hotline: 1-800-284-0251
e-mail:
info@peakparent.org

Parent Advisors: 1-800-284-0251 or parentadvisor@peakparent.org

 

PEAK Parent Center is Colorado's Parent Training and Information Center. It is a statewide organization of parents of children with disabilities reaching out to assist other parents and professionals. PEAK Parent Center's commitment is that children, youth, and adults with disabilities lead rich, active lives and participate as full members of their schools and communities. They also offer a very detailed calendar on the Peak Parent Website at http://www.peakparent.org/calendar.asp. The calendar can be searched by dates, disability category or month.

 

Colorado Person-Centered Planning Initiative

PEAK Parent Center, the Colorado Department of Education, and the Colorado Developmental Disabilities Council provide person-centered planning opportunities to people with disabilities between the ages 3-30 years old.  This process supports the development of personal support circles to assist you in planning for the future. An assigned facilitator and a recorder guide you, your family, and other invited participants of your choice through a creative planning process of identifying dreams, setting goals and planning the steps needed to achieve those goals. After the session, you will have a concrete action plan for working together with your personal circle to reach your desired future.

  • Focuses on a young person’s strengths and interests
  • Gathers a group of the young person’s family, friends, neighbors, teachers, service providers, and others
  • Is positive and enjoyable
  • Helps develop a solid plan for reaching a positive future
  • Person must be between the ages of 3 and 30

  

The Legal Center for People with Disabilities and Older People

www.thelegalcenter.org

455 Sherman, Suite 130

Denver, CO 80203

303-722-0300

The Legal Center is an independent public interest non-profit specializing in civil rights and discrimination issues. They protect the human, civil and legal rights of people with mental and physical disabilities, people with HIV, and older people throughout Colorado.

The Legal Center's primary goal is to open up the legal system to those who would otherwise be unable to voice their needs. The Everyday Guide to Special Education Law, by Randy Chapman, is an essential tool for parents to help them get the best education possible for their child with disabilities.  This book is also a great resource for teachers and school administrators.

 

Colorado Coalition of Adoptive Families

P.O. Box 270398

Louisville, CO  80027-0398

www.cocaf.org

303-620-5150

 

National Resources

 

There has been an explosion of internet resources and materials relating to fetal alcohol spectrum disorders over the last few years.  A few of the resources we have found to be most valuable for families are mentioned below.  Each of them leads to more resources if you are interested in learning more.

 

The Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence

http://www.fascenter.samhsa.gov/

The Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence is a project of the Substance Abuse and Mental Health Services Administration (SAMHSA). The FASD Center is a Federal initiative devoted to preventing and treating FASD.  The mission of the FASD Center for Excellence is to facilitate the development and improvement of prevention, treatment, and care systems in the United States by providing national leadership and facilitating collaboration in the field.   The Web site provides information and resources about FASD.  For more help, you can request training and technical assistance. It also provides materials you can use to raise awareness about FASD.

 

National Organization on Fetal Alcohol Syndrome

900 17th Street, Northwest, Suite 910

Washington, D.C. 20006

Tel: (202) 785-4585 and 1-800-66-NOFAS toll-free)

Fax: (202) 466-6456

E-mail: information@nofas.org

Web Site: http:\\www.nofas.org

 

NOFAS is committed to raising public awareness about Fetal Alcohol Syndrome, the leading cause of mental retardation, and seeks to implement innovative ideas in prevention, education, intervention and advocacy. NOFAS takes a multicultural approach to prevention and healing among individuals, families and communities. NOFAS publishes brochures and a quarterly newsletter, “Notes on NOFAS”, which is free.  They also have a state-by-state resource directory developed in conjunction with the Centers of Disease Control and Prevention that can be purchased or can be requested from their own state.  This comprehensive listing of services contains valuable information for physicians, health care workers, FAS program counselors, teachers, parents and others seeking quick and accurate information NOFAS sponsors community seminars, and a national conference; call for further details.

 

Family Empowerment Network (FEN)

UW Dept. of Family Medicine

777 South Mills Street

Madison, WI. 53715

Contact Person: Patricia Cameron

Tel: (1- 800) 462-5254, 608 262-6590

Fax: 608 265-2329

Email: fen@fammed.wisc.edu

Website: www.fammed.wics.edu

 

A national organization serving families affected by Fetal Alcohol Syndrome and Fetal Alcohol Effects and the professionals who work with them. FEN does research and provides resource materials, technical assistance, an 1-800 advocate phone line, educational opportunities, an annual conference, and a teleconference series. Their mission is to empower families through education.  Their web site is comprehensive and links to many other relevant web sites.  It is a good place to start.

 

Centers for Disease Control and Prevention  (CDC)

http://www.cdc.gov/ncbddd/fas/default.htm

 

This federal agency monitors Health, detects and investigates health problems, conducts research to enhance prevention, and develops public policy to promote healthy behaviors nationally and worldwide. CDC funds programs focusing on the prevention and surveillance of FAS and on prevention of secondary disability in children with prenatal fetal alcohol effects.

 

 Bill Dobovsky Memorial FASD Lending Library

Information for both  professionals and parents, including articles on FASD behavioral issues and FASD success stories.  It is run by a parent of an adult with FASD. Check out the online library with books and materials on FASD available to parents free of charge.

http://come-over.to//FAS/booklend.htm

 

 Fetal Alcohol Syndrome Consultation, Education and Training Services, Inc.  (FASCETS)

http://www.fascets.org

FASCETS is a non-profit organization whose objective in part is to support improved outcomes for those with FAS/ARND.  Diane Malbin is a nationally known trainer and educator on techniques that work for individuals with FAS/FASD.  She provides current information and resources for supporting children, adolescents and adults with FAS/ARND, and for professionals and agencies working with them.

 

Fetal Alcohol Syndrome Handbook

The University of South Dakota Center for Disabilities

 http://www.usd.edu/cd

 

A well written handbook that provides an overview of Fetal Alcohol Syndrome and Fetal Alcohol Spectrum Disorders with reference to other resources.  It provides a readable starting place for those just learning about FAS.  The entire handbook can be downloaded and printed.

 

http://come-over.to/FASCRC/

 

University of Washington Fetal Alcohol Diagnostic Unit

http://depts.washington.edu/fadu/

 

Access to the Iceberg newsletter

http://www.fasiceberg.org/

 

FAS Bookshelf Inc

http://www.fasbookshelf.com/

 

 

4 Paws

4 Paws is a contact for FASD Service dogs

http://www.4pawsforability.org/FASDdogs.html

 

Books   

Suggested reading:

Trying Differently Rather than Harder.  Diane Malbin, M.S.W.  Contact FASCETS, Inc.  at 503-621-1271 or www.FASCETS.org.

Fantastic Antone Succeeds edited by Judith Kleinfeld and Siobhan Westcott, University of Alaska Press

FAS :Parent and Child  by Barbara A. Morris and Lyn Weiner

Fetal Alcohol Syndrome: A Guide for Families and Communities by Ann Streissguth

 

 

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Last modified: 09/25/13